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Speak Up
and
Speak Out
The Edmonton Down Syndrome Society, which
began informally with four families, now offers various programs, including speech therapy, to support individuals with Down Syndrome. The organization provides a safe and supportive environment where families can connect, share experiences and celebrate their loved ones’ achievements.
Betty shared insights into Wade’s journey with Down Syndrome, and emphasized the importance of speech therapy. “Speech was really, really important for him
to get his message across. He really wanted people to understand him,” she said.
The therapy helped Wade develop clearer speech, enabling him to express himself confidently and participate more actively in conversations. Betty noted the therapy’s impact on Wade’s self-confidence and social interactions, allowing him to connect more meaningfully with others.
“What the speech therapy did for him was give him a chance to step back, think about what he wanted to say, and then he could slow his speech down so he could get his point across,” said Betty.
Janet Tryhuba, Executive Director of the Edmonton Down Syndrome Society, highlighted the significance of these kinds of endowment funds. “It means a great deal ... it helps create that pipeline of dedicated donors who have thought carefully about what their gift will do with our charity and give us that steady pipeline of funds for the future.”
The Screpneks’ fund ensures continued support for speech therapy, which is crucial for individuals with Down Syndrome to communicate effectively and build stronger connections within their families and communities.
They said it was difficult to access speech therapy services 50 years ago, noting the financial strain and lack of support available at the time. This personal experience fueled their desire to help other families facing similar obstacles. “Helplessness is certainly a feeling that often consumes me. And that kind of feeling, you either turn into a victim or you turn into a stronger person and do something about it.” Betty said.
The Wade Screpnek Speech Therapy Fund is a testament to the power of community and the importance of giving back. As Screpnek put it, “pick one, pick two, and give while you can.”
The Screpnek family helps people with Down Syndrome find their voices
BY HIBA ZAIDI
Every voice deserves to be heard, but, for many, finding their voices can be challenging. The Wade Screpnek Speech Therapy Fund is a beacon of hope for individuals with Down Syndrome, transforming their unsure whispers into strong, confident voices.
The fund was created in February 2023 by Betty and George Screpnek — a celebration of their son Wade turning 50. Its aim is to support families with the costs of accessing speech therapy, particularly through the Edmonton Down Syndrome Society. Wade, a compassionate and community-oriented individual, has made remarkable strides thanks to speech therapy.
30 LEGACY IN ACTION